Medication - petition

[Filonian]

Hi All,

I would like you all to read the following, and if you are in agreement, sign the petition.


"I have a friend online who needs your help to get the pain relief she so desperately needs. This petition may impact upon everyone trying to get the drugs that will improve their lives.

This is a brief outline of her story, please sign the petition .



My name is Gillian Eames l am 54 and have been struggling with a disease called Ankylosing Spondylitis for over 20 years.
l have been taking part in a clinical drug trial for the last 5 years on a drug called Anti-Tnf. l self inject twice a week ,this drug has changed my life in regards to coping with pain and improved mobility. Before taking part in trial my life was constant unbearable pain. which l can not go back to.

The trial ended on Friday 6th July 2007 and Bromley Pct are refusing to fund me to stay on the drug.
l have a petition on downing street webb site.
http://petitions.pm.gov.uk/ANTI-TNF/ (you must activate email sent back to you)

Please will you help me in my plight to get funding to stay on this drug by signing my petition.


Kindest Regards
Gill x "



Thanks for looking,

Graham

[Techy111]

I come across stuff like this everyday in my "job" and can understand this ladies plight.....The NHS is underfunded but thats another can of worms.....petition signed

Techy

[Garry Russell]

Me too Graham

Send her my best

Garry

[DelP]

From me as well....

...and for anyone who doesn't know what Ankylosing Spondylitis is, go here...

http://www.nass.co.uk/questions.htm

Derek

[ianhind]

Having waded through some of the available documentation on this topic, it looks like some long-term "health economics" clinical trials specifically for ankylosing spondylitis have ended. Now it is up to NICE to make up their minds on whether this class of drug is cost-effective. Never seen so much pseudo-science allied with mathematical modelling.

In the meantime some health authorities are continuing to provide the drug while others are not (postcode lottery?).

The hope is that NICE can be persuaded that it should be available to everyone who needs it.